Information-seeking pathways of Chinese parents of children with autism spectrum disorder in the context of seeking project-specific information
Huan Zhong, Zhengbiao Han · Aslib Journal of Information Management · 2024
Purpose To explore the project-specific information-seeking pathways of Chinese parents of children with autism spectrum disorder (ASD) and understand the information seeking in their daily lives. Design/methodology/approach This study utilized the interview, critical incident technique and information horizon mapping to gather data from 27 Chinese parents of children with ASD during project-specific information seeking. These data were then examined using content analysis and descriptive statistics methods. Findings First, the information-seeking pathways of parents of children with ASD show the significant importance of both interpersonal and online sources, characterized by the combined use of multiple types of information sources. Second, information-seeking pathways considerably vary across project contexts. For diagnosis and school selection, parents had fewer pathways and primarily relied on interpersonal sources. Meanwhile, they utilized interpersonal and online sources combined for selecting rehabilitation institutions and methods, with the most information-seeking pathways for rehabilitation methods. Originality/value This study presents novel insights into the information-seeking pathways of Chinese parents of children with ASD in seeking project-specific information. It provides valuable references for relevant governments and rehabilitation institutions in building information service platforms, strengthening information quality regulation and providing information resources for parents of children with ASD.