A CLARIN Contractual Framework for Sharing Personal Data for Scientific Research
Krister Lindén, Aleksei Kelli, Alexandros Nousias · Linköping electronic conference proceedings · 2020
The development and use of language resources often involve the processing of personal data.Processing has to have a legal ground.The General Data Protection Regulation (GDPR) provides several legal grounds.In the context of scientific research, Consent, Public interest and Legitimate interest are relevant.The main question is when researchers should rely on Consent and when on Public or Legitimate interest to conduct research.All three grounds have their advantages and challenges.For comparing Consent and Public interest, the Clinical Trial Regulation is used as an example.In addition, we study how this has been implemented in Finland based on the guidelines for research data from the Data Protection Ombudsman and suggest an update of the CLARIN Deposition License Agreement templates to accommodate data sets with personal data.