How the General Data Protection Regulation changes the rules for scientific research: Study
Marcello Ienca, James Scheibner, Agata Ferretti, Felix Gille, Julia Amann, Joanna Sleigh, Alessandro Blasimme, Effy Vayena · Repository for Publications and Research Data (ETH Zurich) · 2019
How the General Data Protection Regulation changes the rules for scientific researchThe implementation of the General Data Protection Regulation (GDPR) raises a series of challenges for scientific research, in particular for research that is dependent on data.This study comprehensively investigates the promises and challenges associated with the implementation of the GDPR in the scientific domain, with a special focus on the impact of the new rights and obligations enshrined in the GDPR on the design and conduct of scientific research.Furthermore, the study examines the adequacy of the GDPR's derogations for scientific research in terms of safeguarding scientific freedom and technological progress.The study also provides policy options that delineate a pathway towards enhancing rather than stifling research, and facilitating privacy-preserving data-driven research under the provisions of the GDPR.