Sharing Access to Behavioural and Personal Health Data
Giovanna Nunes Vilaza, Jakob E. Bardram · 2019
Behavioural and personal health data can be collected from smartphones, wearable and sensors. Besides using this data as a tool for self-reflection and self-management of health issues, it can also be beneficial to share it with others. The purpose of sharing can range from getting peer support to communicating better with clinicians or contributing to scientific research. However, sharing access to behavioural data can disclose sensitive details of the individuals' lives, and it may be challenging to make shared-access systems adopted, accepted and continuously used. In order to better inform the development of future systems, a review of the literature and a focus group were conducted. The findings presented here provide pointers to some essential considerations to be taken into account when proposing systems for behavioural data sharing.