Direct-to-Consumer Genetic Testing and Potential Loopholes in Protecting Consumer Privacy and Nondiscrimination
Rachele Hendricks‐Sturrup, Anya E. R. Prince, Christine Y. Lu · JAMA · 2019
This Viewpoint discusses privacy and discrimination issues raised when direct-to-consumer (DTC) genetic testing companies give law enforcement agencies access to their data, and gaps in nondiscrimination and HIPAA regulations protecting consumers of DTC genetic testing more generally.