Keeping Users at the Center: Developing a Multimedia Interface for Informed Consent
Loel Kim, Amanda Young, Robert A. Neimeyer, Justin Nathaniel Baker, Raymond Carlton Barfield · Technical Communication Quarterly · 2008
Viewing “informing” as a process to protect patients and support autonomy, we undertook a user-centered design process to develop online support for informed consent in pediatric Phase I research trials. Challenges included (a) delivering accurate information to people unfamiliar with medical terminology; (b) delivering this information humanely under time constraints and heightened emotions; (c) allowing users control over the information, while ensuring availability of legally required information. We addressed these challenges through analyses of audience, task, and information design.