Protecting Genetic Information: A Comparison of Normative Approaches
Patricia Kosseim, Martin Letendre, Bartha Maria Knoppers · Érudit documents and data repository (Érudit Consortium, University of Montreal) · 2004
The increasing use of genetic information has emerged as an important concern worldwide as scientific and technological advances continue to advance at lightening speed and as governments struggle to develop appropriate policy frameworks. While most countries clearly recognize that genetic information warrants some form of privacy protection, the underlying rationale for providing that protection and the approach which is ultimately adopted vary significantly across the board. As a result, a medley of laws, policy statements and guidelines currently exist to protect genetic information, each with its inherent assumptions, concepts and terminology.